February 7, 2025 - 23:23
As a mother, I believed that science and medical advancements would provide clarity and support for my son’s battle with Long COVID. I expected that the complexities of his condition would be recognized and understood by healthcare professionals. However, my experience was far from what I had anticipated. Despite my efforts to communicate the severity of his symptoms and the challenges we faced, it often felt as though my concerns went unheard.
I found myself in a position where I had to advocate fiercely for my son’s needs. Each doctor’s visit turned into a struggle for validation, as I repeatedly explained the impact of Long COVID on his daily life. The frustration of feeling overlooked was compounded by the emotional toll of watching my son endure this debilitating illness. My voice, which should have been a vital part of his care, seemed to be dismissed.
This journey has highlighted the importance of listening to patients and their families, especially in cases where conditions like Long COVID are still being understood. It is crucial for healthcare providers to recognize that the insights of caregivers can significantly influence treatment and recovery.
